Title page for ETD etd-02082008-104048

Type of Document Master's Thesis
Author Peirce, Erin L.
URN etd-02082008-104048
Title A Qualitative Study of Non-Caregiving Adult Children's Experiences of a Parent's Alzheimer's Disease
Degree Master of Science
Department Human Development
Advisory Committee
Advisor Name Title
Huebner, Angela J. Committee Chair
McCollum, Eric E. Committee Member
Stith, Sandra M. Committee Member
  • caregiving
  • ambiguous loss
  • family systems
  • non-caregivers
  • Alzheimer’s disease
Date of Defense 2008-01-29
Availability unrestricted
Although there is abundant research on the etiology of Alzheimer’s disease and its impact on primary caregivers, there is relatively little research that examines the consequences of the disease for entire families, and no literature that exclusively studies the experiences of non-caregiving family members. Seeking to explore the experience of non-caregivers, this qualitative study examined how adult children of an Alzheimer’s patient who were not the caregiver for their parent experienced the onset and progression of the disease. Using the guiding theoretical frameworks of phenomenology, family systems theory, and ambiguous loss, in-depth interviews were conducted with three individuals and were coded for themes. The main themes found included externalization of symptoms, belief in the Alzheimer’s diagnosis, acceptance, flexibility, sibling and parental relationships, communication, planning, shared family philosophy, family of origin roles, and boundary ambiguity. Implications for clinical practice and suggestions for future research are included.
  Filename       Size       Approximate Download Time (Hours:Minutes:Seconds) 
 28.8 Modem   56K Modem   ISDN (64 Kb)   ISDN (128 Kb)   Higher-speed Access 
  finalthesis.pdf 337.05 Kb 00:01:33 00:00:48 00:00:42 00:00:21 00:00:01

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